The Last Enemy

I wrote about the two grief clubs I belong to, and about our vocabulary of loss, over in the blog Circling the Story.

"This grief [after losing Aidan] feels so completely different from my grief after losing Caitlin that it should have a different name. Just like Arabic has eight different words for “cousin” depending upon the gender of the cousin and the side of the family, perhaps we should have different words for grief depending upon the nature of the loss.

"This time around, it feels like the intensity of grief will never end. Now, two years and three months since Aidan died, I cannot imagine a time when his loss will not still be the most important defining fact of my life. I still cry often, usually for just a few minutes; but grief still has the power to astonish me, to knock me off my feet with its exhausting, inexorable tsunami."

Read more of this post at Circling the Story.

Distance

Today, April 21, we remember our Caitlin on her birthday. She would be 19 this year. I wonder how old she is in heaven. I wonder if she and Aidan are buddies. I wonder if there are buddies in heaven.

Caitlin was born at 22 weeks, weighing only 13 ounces (369 grams). We wanted the doctors to take her to a hospital with a unit that specialized in micro-preemies, to work on her, to save her. They couldn't, they said. She was too small (less than 500 grams), they said, and her gestation (less than 25 weeks) was insufficient.

We held her for her whole life. We looked at her and wondered at the tiny perfection of her fingernails and wept at the transparency of her skin. We gave her the name of my grandmother, Libby, for her middle name. I told her story beginning with this blog post.

Since we lost Caitlin, I have wept with many other families who have lost their children. My friend Rock Star, who's little boy died at full term before he was born. My friend Rofu, who lost her twin boys well into the second trimester due to a rare genetic abnormality. My friend Donkey, who lost one of her triplets in the first trimester and the second at term, shortly before his sister was born healthy.

So many other families in our circle have experienced the devastating loss of a baby in late pregnancy or shortly after birth that it feels like it's nearly as common as having a healthy full-term baby. It's not, of course: 

Rates of pregnancy loss decrease as the pregnancy progresses. Overall, about 10 to 20 percent of all recognized pregnancies and 30 to 40 percent of all conceptions end in pregnancy loss. Miscarriage that occurs at 13 to 14 weeks' gestation usually reflects a pregnancy loss that happened one to two weeks earlier. Approximately 1 to 5 percent of pregnancies are lost at 13 to 19 weeks' gestation, whereas stillbirth occurs in 0.3 percent of pregnancies at 20 to 27 weeks' gestation, a rate similar to that of third trimester stillbirth. (Source here.)

You feel like you can't go on, when you leave the hospital with empty arms. You feel like the rest of the world should stop, because yours did. You feel like the most important thing anyone could know about you is that you had a baby, and she died.

And for the first few months, for the first year, maybe longer, this is your life. You pull the seatbelt around your waist and you think, "I'm not supposed to have a waist yet." You go to church or for a walk around the block, and you quietly resent the pregnant women and any woman holding a baby. You avoid going anywhere near the strollers and baby clothes at Target.

You feel like your face looks different, that anyone who looks at you can see in your eyes that you had a baby, and she died. Maybe they can.

And gradually, but not linearly, you cry a little less, and then a little less. When you meet people, you are able to tell them that you grew up in Philadelphia, or that you still love to play softball. The conversation about the baby you lost is not always the first conversation any more.

Is it easier, or harder, or just different, to mourn a child with whom you never had a chance to create memories, compared to mourning a child that you've nurtured from infancy to almost manhood?

I think I need a little more distance from this present grief to really know.

Learning How to Breathe

Like an accident victim re-learning how to walk after months in bed, I am slowly beginning to re-learn how to breathe. 

After Aidan died--it will be two months tomorrow--I felt like I had to remind myself to breathe. I had to push each breath out deliberately, or it would lie too long in my lungs. It helped if I pushed on my chest, right in the middle, at the top of my ribcage. After the exhale, I'd wait to inhale, expecting that if I waited long enough, when I started breathing again, things would be different. Aidan would still be here. Aidan would still be breathing. 

(I have to use his real name, and not his Peevie moniker, because being whimsical just doesn't feel right any more. My whimsy is gone, at least when I'm talking about Aidan.)

I have made progress in the breathing department, but I am still lost and confused and empty with regard to every other aspect of life. How do I go back to work? How do I read books about anything other than grief and loss? How do I tell jokes, and laugh, and find beauty in the world? 

Maybe it's too soon for any of these things.

How do I answer when someone asks me how I'm doing? It's a normal question. It's not wrong that people ask me; in fact, I understand that they say it to be encouraging, to express love and support.

How am I doing? Here are my answers: Nothing is as it should be. Shitty. Empty. Sad. Bereft. I finally started to cry, after four weeks of wondering where my tears were.Like a blanket of fog is hanging low over the architecture of my life, touching and obscuring everything, dampening or deadening all pleasure and enjoyment.

I'm reading (and re-reading) everything I can about grief and loss. So far I've read Lament for a Son, by Nicholas Wolterstorff; The Year of Magical Thinking by Joan Didion; The Problem of Pain by C. S. Lewis; and I'm halfway through a collection of essays called Be Still My Soul, edited by Nancy Guthrie.

I still want to talk about Aidan all the time, remember him, have people remember him to me. I don't really want to talk about books or movies or politics or celebrity gossip or anything that doesn't directly connect to Aidan. I remember this feeling after Caitlin died. I remember that for a year after we lost her, our first child, born prematurely and living only two hours, the most important thing you could know about me was that we had a baby and she died.

And now this is The Thing that defines me: the lack of Aidan. There is no Aidan--at least, not on this earth.

I am clinging to Aidan's things in his room, to Manny, his stuffed manatee, to his poems, to photos of Aidan sitting on the beach writing in his journal, goofing around with his friends or siblings, smiling into the camera with his gentle, sweet grin.

And with feeble faith, I cling also to the hope of the resurrection, and to God's promise:

We believe that Jesus died and rose again; and so it will be for those who have died in Christ. God will raise them to be with the Lord forever. Comfort one another with these words. --I Thessalonians 4:14, 17-18

Surprised by Joy

Today I should be heading to the Secretary of State's office with my daughter to get her driver's license. We should be playing hooky together to celebrate her 16th birthday, and maybe going shopping, having lunch, and getting her hair cut.

But Caitlin was born too soon and did not survive; and I lost not just my tiny daughter, but my entire future with her. The future looks different when you lose a child, and especially when you lose a baby with whom you have not even had a chance to make memories. You've started to make plans, you've started to wonder: what will she look like? Will she be a princess or an athlete--or both? Will she inherit math-phobia from mom, or have a knack for numbers, like dad? Will she be a rock star? A poet? An engineer? A mom? Every expectant parent imagines and anticipates the moments of sweetness and connection: sitting in a rocking chair singing lullabies; stretched out on a bed reading books; walking in the door at the end of the day and hearing, "Mommy!" (or "Daddy!").

Getting through those first few months was painful and lonely, but losing Caitlin eventually supplied me with a mission: to walk beside others who are going through the same painful loss of a pregnancy or infant. I don't have anything to offer except empathy and compassion. Sometimes it helps a grieving parent to know that someone else has gone through that dark valley, and come out on the other side, where eventually, hope and laughter return, where we can again be surprised by joy.

The brief lives of Grace, Jonathan and David, John Paul, Abigail, Jeremiah, Luke, Willow, and Jack touched many people besides just their parents and siblings. The continual presence of their absence changes the future, and we may never understand why God allowed these lives to be conceived and then cut short.

And now there's another one. Tomorrow I'm getting together with Matthew's mom, two weeks after his birthday, which was also the day he died. Another mom struggling to put one foot in front of another, watching the rest of the world go about its business while she wants to scream, "I had a baby, and he died!" I'll sit with her, and ask her to tell me Matthew's story if she wants to, and I won't try to cheer her up by telling her, "Don't worry; you can have another baby!" I'll try to help her feel a tiny bit less alone.

Maybe I'll bring her a copy of this poem by William Wordsworth, which my friend Irish read at Caitlin's memorial service:

SURPRISED by joy--impatient as the Wind
I turned to share the transport--Oh! with whom
But Thee, deep buried in the silent tomb,
That spot which no vicissitude can find?
Love, faithful love, recalled thee to my mind--
But how could I forget thee? Through what power,
Even for the least division of an hour,
Have I been so beguiled as to be blind
To my most grievous loss?--That thought's return
Was the worst pang that sorrow ever bore,
Save one, one only, when I stood forlorn,
Knowing my heart's best treasure was no more;
That neither present time, nor years unborn
Could to my sight that heavenly face restore.

So I'm not doing normal mother-daughter birthday things with Caitlin--but I'm saying her name a lot today. And maybe tonight we'll have cake in her honor. I'll bet she'd like that.

Caitlin's Story, Part Two

Read Part One here.

I stayed overnight in the hospital, and got a slow ambulance ride home the next day. The EMTs carried me, sitting up and strapped into a transport chair, into my house, and up the stairs to my bedroom. Mr. Peevie had gotten the room all situated, with the foot of the bed elevated to give gravity a hand in keeping my baby inside of me.

I laid down in bed, and didn't get up for two weeks. I peed in a bedpan, bathed from a bucket, and ate grapes and sandwiches from a cooler next to the bed. It was awesome. If anyone was ever made for bedrest, it was me. The only thing that would have made it better would have been cable TV.

It was all for naught. One day I felt wetness in my underwear, and I thought, "Oh, geez, I just peed in my pants!" Mr. Peevie picked up test strips from the pharmacy upon the recommendation of a doctor friend, and sure enough, it wasn't pee, but amniotic fluid.

An ultrasound at the hospital later that day revealed that most of the amniotic fluid was gone. Even if she stays put, they told me, she won't thrive without fluid around her. The doctor said "induce," but I couldn't pull the trigger on forcing her out before she was ready. The doc also said there was a tiny, slight, almost negligible chance that the amniotic fluid would renew itself--and I clung to this hope, clenching my thighs together and praying more desperately than I had ever prayed in my life.

A couple of days went by like this, with the docs and nurses checking on me, and everyone urging me to go ahead and let them induce labor. "Letting the baby stay inside you won't help her," they told me, "but the danger of infection is very great for you." What did I care about a stupid infection? I only cared that as long as the baby was inside me, she was still alive, and still possibly developing, possibly increasing her chances of survival once she was born. To induce at this point felt like giving up, abandoning her, or worse: killing her. I couldn't do it.

I prayed for a miracle.

Mr. Peevie and I talked about names for this baby who would probably not survive. Should we give her the first choice name we had picked out? We wouldn't be saying that name as we watched our child grow up; should we save it for a child who would run around in our home, so that we'd have a chance to actually say her name? Every time we tried to have this conversation, Mr. Peevie would break down.

How do you even make a decision like that?

On Sunday night I spoke to another doctor friend, who cried with me on the phone, and who also advised me to go ahead and induce.

"E. Peevie," he said gently, "Even if she stays inside you, her lungs will not develop without amniotic fluid. You are risking your future fertility, and your life, without any benefit to the baby. Let them induce." I don't know why this conversation changed my mind--our minds; but it did. The next day we told the doctor we were ready to go ahead and induce.

The baby was already partially in the birth canal by the time they had me dosed with pitosin and ready for delivery. I gave a small push, and out she came, all 13 ounces of her.

"Does she have a name?" asked the neonatologist.

"Her name is Caity," I said. We honored her with the name we had chosen, including the name of my grandmother, who we always called by her maiden name, Libby: Caitlin Libby. They wrapped her up and brought her over, and we wept. She was red and fragile, with lips like mine and a tiny bruise on her bony, bald head.

My pastor came and stood by the side of my bed, looking down on our daughter. He didn't say a word--like Job's friends in the Old Testament. He cried, and his tears preached a sermon on compassion and empathy.

We held Caitlin for two hours, examining her, kissing her, and crying over her. It was awful and also amazing. I was too numb to feel much besides sadness--but later I became angry that she was so perfect, and the only reason she didn't survive was that my body failed her.

When we left the hospital, I did not know how I was going to put one foot in front of the other. I looked around me at the world going on a usual, and it felt obscene. I wanted to scream out the car window as we drove past yard sales and people pushing strollers and people actually having the nerve to smile and laugh, "I had a baby and she died!" As the days passed, I began to realize that we had not just lost a baby; we had lost an entire future with her.

During the next few months, I wrestled with angry questions, which all came down to the problem of evil: is belief in God compatible with the existence of evil? I did not let go of my belief in the existence of God, but for the first time, I needed a theodicy: a vindication of God's goodness and justice in the face of the existence of evil.

God must be cruel, I reasoned, or else powerless to prevent pain and evil. How could a God who was good allow such terrible pain and unfairness?

God did not abandon me to doubt and disbelief. Eventually, even without understanding why Caitlin died, I remembered the goodness of God. I had always believed that God was good, but this belief had never been tested. Eventually, after having it tested from a place of deep pain and doubt, I found it to be more true and relevant than ever before.

When peace like a river attends my soul
When sorrows like sea billows roll--
Whatever my lot, Thou hast taught me to say
It is well, it is well, with my soul.

As time went by, I found I could be grateful to God: for two hours to hold Caitlin while she lived; that she resembled me, having my lips and my nose; that Mr. Peevie and I both learned about our capacity to love, and had the amazing experience of loving Caitlin; that Mr. Peevie was able to express his own grief, and that our marriage grew stronger as a result of our shared loss; for our friends and family who stood by us and cried with us and helped us through it.

Today Caitlin would be 15 years old. Is she 15 in heaven? (Do people age in heaven?) What color are her eyes? Is she rambunctious and non-compliant like my other three kids--or is she the quiet and compliant one? That would just figure.

Love you, baby.

Remembering Caitlin

Tonight after dinner, the kids and Mr. Peevie and I will eat chocolate cake in honor of what would be our daughter Caitlin's 14th birthday. We'll each say something about Caitlin, even though we never knew her.

One time six years ago, we were having this same little memorial event. C. Peevie said, "I miss you Caitlin, even though I never got to meet you."

And A. Peevie, who was four at the time, was not to be outdone. "I miss you, Caitlin," he said, and continued happily, "You poo-poo head."

I don't know if this tradition is weird, or nuts, or psychologically damaging--but it feels right for our family. I'm pretty sure that it arose out of our children's unquenchable desire for cake, rather than from their feeling of loss for their sister.

Remembering Caitlin didn't always involve cake. In the beginning, Mr. Peevie and I would just quietly mention our little girl's name to each other, and futilely wonder what our lives would be like with her in them. We wonder what color her eyes were, and if she'd be a gymnast, or a tennis nut, or a piano player.

We still cried, back then; occasionally, we still do. Not so much because the feeling of loss is still painful--but because we can clearly remember the pain of losing her. (I read somewhere that our brains do not have the capacity to "remember" pain. I call bogus.) I remember the strong urge I felt for months, when I would see people going about their normal lives, to shout at them, "I had a baby, and she died!"

Telling Caitlin stories brings tears to my eyes, but they're good tears, if you can understand that. Caitlin is a part of our family, just as much as if she had lived. Losing her is no longer the most important part of my identity (as it was for many months), but it will always be part of who I am. To not talk about her is to deny her, and to deny a part of me.

Shortly after Caitlin died, I read an essay about grief in the New York Times by Anna Quindlen. She was speculating about why grief "has the power to silence us." Here's a slice of her beautiful, powerful words:

Grief remains one of the few things that has the power to silence us. It is a whisper in the world and a clamor within. More than sex, more than faith, even more than its usher death, grief is unspoken, publicly ignored except for those moments at the funeral that are over too quickly, or the conversations among the cognoscenti, those of us who recognize in one another a kindred chasm deep in the center of who we are.
Maybe we do not speak of it because death will mark all of us, sooner or later. Or maybe it is unspoken because grief is only the first part of it. After a time it becomes something less sharp but larger, too, a more enduring thing called loss.
Perhaps that is why this is the least explored passage: because it has no end. The world loves closure, loves a thing that can, as they say, be gotten through. This is why it comes as a great surprise to find that loss is forever, that two decades after the event there are those occasions when something in you cries out at the continuous presence of an absence. "An awful leisure," Emily Dickinson once called what the living have after death.

"The presence of an absence"--if you've lost someone, you know what that means, what it feels like.
Yesterday I was wearing my "Caitlin necklace"--an April birthstone pendant on a slim gold chain. My friends gave it to me for my birthday, six weeks after she was born. It was a beautiful, touching, sensitive gesture, from gentle friends who understood that even though remembering might bring tears, it also brings healing.

M. Peevie noticed my necklace, and I asked her if she knew why I was wearing it.

"Because Caitlin died," she said matter-of-factly.

"Yes," I said, "That's part of it. But also because tomorrow is Caitlin's birthday."

"Oh, mom," M. Peevie said, "Let's have cake tomorrow night, and remember Caitlin together as a family!"

Great idea, little girl.